When the weather gets cold the lap cat shows up. So, if it's not summer and night time and I'm watching something on television or reading, this is pretty much the scene. Freckles sleeps on me while we're on the couch, but she switches to Stacey at night in bed. We call her the heat mooch!
Today was the day that we have been waiting for since April 2011. Jonathan's g-tube was finally removed! Jonathan has essentially had the g-tube his entire life, getting all or most of his nutritional needs via it for the first couple years of his life. Only in the last couple of years (he's seven now) has he really started to eat enough to consider taking it out.
In order to take it out he needed to eat enough on his own without ANY tube usage for three months or more and also stay to on his growth curve. He did just that. At the beginning of the process he didn't want to have anything to do with food. But now, since he's older, he decided that he wanted to get it out before he started first grade. It's interesting how a little maturity changes our ability to reason with him and for him to decide on his own it was coming out. On top of the hassle and occasional pain, I think for him it was mostly the social pressure that made him want to get it out. He wanted to wear a shirt while swimming up to this point, and now with it out he has no problem taking off his shirt when wrestling with Kensei, his neighborhood friend.
I won't rehash the years of having to using the feeding pump, bags, and back pack or the countless syringe feedings and food logs. That's in the past now and he's on his way to being just like everyone else. A couple of years ago I had changed out his tube to a new one at home, so he wanted me to be the one to take it out at the doctor's office. I had the easy part - Stacey had the hard part for years. After a weigh in and chat with Dr. Waasdorp, we laid him on the table, deflated the balloon, and out I pulled it.
Later that night we took him to dinner to celebrate. His choice. He wanted to go to P.F. Chang's, which was interesting, because we've never gone there as a family before. We've been there once or twice with Grandpa and Grandma, and they've taking the kids there, so maybe that's why it seemed like a natural choice as a special place to celebrate. The kids ate well and even got ice cream for dessert (pictured below). I didn't notice this until now...not even when we were there...but check out the blue neon sign behind the kids! It's a sign. No, really, I mean IT'S A SIGN that this really was a special day!
We cleaned up the g-tube and are saving it for Jonathan's "scrapbook". That probably seems a little weird to people that haven't been dealing with something like this, but for us it's always going to be a part of Jonathan's growing up. Now that he's a big first grader he's got the rest of his life ahead of him without it. We love you Jonathan! Way to go Buddy!

Julia and Stacey spent the night up in Denver tonight so Julia could complete a sleep study. The nurses monitored her breathing and movement overnight for signs of sleep related issues. The good news is that the results came back normal. So, the best we can figure out is that her apparent tiredness is either diet or personality related (introvert, etc.). We'll keep monitoring things and see what we can find out in the coming months.
