Today is my 33rd birthday. Thanks to everyone for the balloons, cards, calls, emails, and thoughtful gifts. I'll respond soon. The celebration will have to wait - the show must go on.
This morning at 12:30 a.m. Jonathan unleashed again all over me in our sleep. This was a disappointing start to the day considering we had turned a corner yesterday. Although it was a bummer, Doctor Yasdi didn't seem to mind the fact that this is happening once a day considering what we suspect is the major cause. The nurse called him shortly after it happened and he ordered that we take a three hour break until 4 a.m. and schedule another x-ray first thing in the morning.
As he suspected and confirmed on the x-ray today, the NJ tube was still just slightly below the stomach. It's not surprising that some formula leaked back up into the stomach since it was so close. Later in the day they moved the tube down another 5 "ticks" so that it would sit lower in his GI tract. He also decided to lower the volume from 40 to 30 ml/hr at night so Jonathan can keep all of the progress in his system.
Our schedule was slightly altered. Tomorrow they are going put Jonathan under anesthesia for the endoscopy. They'll send the camera and light down into his tummy and look around for anything abnormal. I believe they are still going to take a few biopsies to test for inflammation. He's also going to draw some more blood and clean up or remove the current IV site while he's under. I suspect nothing will come back abnormal tomorrow.
Because he didn't want the stomach emptying test to be affected by the anesthesia, Doctor Yasdi moved it to Thursday. He wants to be absolutely sure Jonathan is "being himself" when we run the stomach emptying test. Assuming we've covered everything else and it all looks normal, this test should provide some solid answers. Thursday we should know what the course of action, solution, and remaining time frame will be...even if we get nothing back from this current process of elimination (no pun intended).